Zapped by Stress

That’s what is happening to my energy level lately. I am exhausted, physically, emotionally, and mentally all the time. There’s so much going on that I am having a hard time just doing basic things. My body aches. I cannot get comfortable. Forget sleep. Just typing this all up is making my hands hurt. UGH.

If you aren’t familiar with EDS, it is a genetic condition that effects the connective tissue in the body. It causes the tissue to be stretchier than it should be. This leads to chronic pain, dislocations, subluxations, swelling, and a whole host of other things that nobody can ever fully understand. The Dysautonomia that I deal with causes random fainting spells. I will lose consciousness with no warning. That makes walking fun!! I have dizzy spells if I look at a screen too long. My head never feels like it is on right. The doctors have ruled out a couple specific types of dysautonomia so that just raised more questions. I am a mystery to most doctors. That was fun at first. Not so much now, 6 years later. If it hadn’t been for one helpful nurse that paid attention to somebody else, I may never have gotten any diagnosis.

I’ve started a new business venture. Selling crafts and ideas with a friend. I am home all the time and, on my good days, I can get several things done to make available. Yesterday was a goodish day. I made 10 wands to sell on our site!! That’s a huge accomplishment to me!! Today, the hot glue gun is my enemy. There are all these braces and splints I could use to make life easier. But we live on one income with 6 people. My splints are not the highest priority.

I do community theater outside of the house from time to time. I’m currently working on a production that opened this past weekend. There is so much stress associated with these productions. But it’s what I do that is mine. Where I am just me. Not Mom, not Wife. I can’t give that up. While I’m working on the production, my kiddos have decided to lose their ever loving minds! STRESS!!! Right now I have 2 hours home alone. No kids, no husband, lazy animals, and nobody needing anything from me. I think I need a nap. 🙂


A little about me….

Oh, where to even begin. I am a mom, wife, bibliophile, geek, coffee lover, romantic, audiophile, introverted country girl. That’s a start. Unfortunately, I am all of those things stuck in a body that doesn’t like me very much. I hope to start chronicling my daily life; health junk, crazy family antics, and stories you simply couldn’t believe. I swear it gets unreal around here. Sitcoms have nothing on this chaos!! I’ve referred to my life as a beautiful disaster for a long time. After sharing a few stories, I can assure you, you will understand why.

I have Ehler Danlos Syndrome Hypermobile as well as Dysautonomia, and a whole slew of other conditions that go hand in hand. I’m not as educated as I should be on my issues, but I am learning. It’s a long process trying to figure out anything related to my health.  Having great doctors helps a lot, which is why I’m struggling. Apparently, I can’t find those great doctors. I’m fighting for SSDI, supposed to have a hearing sometime this year. I’ve been fighting for so many years now. It’s exhausting.

I try my best to remain active, though that doesn’t always get me very far. I am involved in my local theater so that I can keep doing something outside of the house. It’s hit and miss and only a few months out of the year but it gives me something that’s mine and keeps my mind active. All I can say is I’m trying. This has been a roller coaster journey thus far. I don’t expect the ride to smooth out anytime soon. I need an outlet, something I can do even on my bad days. This is my outlet. This is my Real Beautiful Disaster.